[Caregiver burden and social support perceived by patients with chronic obstructive pulmonary disease]

Objectives: To analyse the psycho-emotional state of the primary caregiver, the burden of the usual care in patients with exacerbations of COPD and perceived social support on the part of the patient.

Material and methods: The study included patients and caregivers who came for a specific visit to the COPD clinic of the Chest Diseases Department the Regional Hospital of Malaga. A total of 151 patients with severe/very severe COPD according to the functional classification of severity by Global Initiative for Chronic Obstructive Lung Disease (GOLD) and 96 caregivers were followed-up over a year. The Zarit burden scale (caregiver burden interview) was used, as well as the Duke-UNC questionnaire, validated in Spanish to determine the burden of the caregiver and the social support as perceived by the patient, respectively. The demographic variables recorded were, sex, age, population, cohabitation, relationship and work activity.

Results: The mean age of patients was 66.1 ± 9 years versus their caregivers 60.2 ± 11.5 years. All of the patients, of whom 88.1% were males, were occupationally inactive. The large majority (76.8%) were living with a caregiver, generally a wife or daughter. The social support was perceived as normal by 79.5%, and 19% perceived the social support as low. No burden or mild burden was reported by 79.2% with the Zarit questionnaire.

Conclusions: The mean age of the patients, as well as their primary caregivers, was over 60 years of age. The score on perceived social support showed normal values, except for patients who live alone in rural areas. The Zarit questionnaire gave results of mild or no burden. There was no statistically significant correlation between the Zarit questionnaire and the patient health status, rural or urban area, relationship, or age of the caregiver.