Jane S. Lucas
- Nitric oxide in primary ciliary dyskinesiaBy Woolf T. Walker, Claire L. Jackson, Peter M. Lackie, Claire Hogg and Jane S. LucasWoolf T. Walker*Primary Ciliary Dyskinesia Centre, NIHR Respiratory Biomedical Research Unit, Division of Infection Inflammation and Immunity, Faculty of Medicine, University of Southampton, SouthamptonClaire L. Jackson*Primary Ciliary Dyskinesia Centre, NIHR Respiratory Biomedical Research Unit, Division of Infection Inflammation and Immunity, Faculty of Medicine, University of Southampton, SouthamptonPeter M. Lackie*Primary Ciliary Dyskinesia Centre, NIHR Respiratory Biomedical Research Unit, Division of Infection Inflammation and Immunity, Faculty of Medicine, University of Southampton, SouthamptonClaire Hogg#The Royal Brompton Hospital, Sydney Street, London, UKJane S. Lucas*Primary Ciliary Dyskinesia Centre, NIHR Respiratory Biomedical Research Unit, Division of Infection Inflammation and Immunity, Faculty of Medicine, University of Southampton, Southampton
- Pulmonary radioaerosol mucociliary clearance in primary ciliary dyskinesiaBy Woolf T. Walker, Aneurin Young, Michael Bennett, Matthew Guy, Mary Carroll, John Fleming, Joy Conway and Jane S. LucasWoolf T. Walker1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK2Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKAneurin Young1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton Faculty of Medicine, Southampton, UKMichael Bennett1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton Faculty of Medicine, Southampton, UKMatthew Guy1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK4Dept of Medical Physics and Bioengineering, University Hospital Southampton NHS Foundation Trust, Southampton, UKMary Carroll1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK2Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKJohn Fleming1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK4Dept of Medical Physics and Bioengineering, University Hospital Southampton NHS Foundation Trust, Southampton, UKJoy Conway1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton Faculty of Medicine, Southampton, UK5Faculty of Health Sciences, University of Southampton, Southampton, UKJane S. Lucas1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK2Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK
- Nitric oxide in primary ciliary dyskinesiaBy Woolf T. Walker, Claire L. Jackson, Peter M. Lackie, Claire Hogg and Jane S. LucasArticle | Published in 2012 in European Respiratory JournalWoolf T. WalkerClaire L. JacksonPeter M. LackieClaire HoggJane S. Lucas
- Pulmonary radioaerosol mucociliary clearance in primary ciliary dyskinesiaBy Woolf T. Walker, Aneurin Young, Michael Bennett, Matthew Guy, Mary Carroll, John Fleming, Joy Conway and Jane S. LucasArticle | Published in 2014 in European Respiratory JournalWoolf T. Walker1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK2Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKAneurin Young1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton Faculty of Medicine, Southampton, UKMichael Bennett1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton Faculty of Medicine, Southampton, UKMatthew Guy1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK4Dept of Medical Physics and Bioengineering, University Hospital Southampton NHS Foundation Trust, Southampton, UKMary Carroll1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK2Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKJohn Fleming1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK4Dept of Medical Physics and Bioengineering, University Hospital Southampton NHS Foundation Trust, Southampton, UKJoy Conway1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton Faculty of Medicine, Southampton, UK5Faculty of Health Sciences, University of Southampton, Southampton, UKJane S. Lucas1NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK2Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK
- Diagnosis of primary ciliary dyskinesia: searching for a gold standardBy Jane S. Lucas and Margaret W. LeighJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Academic Unit of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UKMargaret W. Leigh3Dept of Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, USA4Both authors contributed equally to this manuscript
- Growth in patients with primary ciliary dyskinesia (PCD): A multinational studyBy Myrofora Goutaki, Elisabeth Maurer, Mieke Boon, Carmen Casaulta, Jane S. Lucas, Lucy Morgan, Kim G. Nielsen, Panayiotis Yialouros and Claudia E. KuehniMyrofora Goutaki1Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandElisabeth Maurer1Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandMieke Boon2Department of Pediatrics, University Hospital Gasthuisberg, Leuven, BelgiumCarmen Casaulta3Department of Pediatrics, University Children's Hospital of Bern, Bern, SwitzerlandJane S. Lucas4Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust and University of Southampton Faculty of Medicine, Southampton, United KingdomLucy Morgan5Department of Respiratory Medicine, Concord Hospital Clinical School, University of Sydney, Sydney, AustraliaKim G. Nielsen6Danish PCD Centre Copenhagen, Paediatric Pulmonary Service, Department of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, RigsHospitalet, Copenhagen, DenmarkPanayiotis Yialouros7Cyprus International Institute for Environmental & Public Health in Association with Harvard School of Public Health, Cyprus University of Technology, Limassol, CyprusClaudia E. Kuehni1Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland
- Differences in symptoms between patients with and without PCD: Data from a PCD diagnostic referral centreBy Laura Behan, Samantha Packham, Amanda Harris, Sin Tung Mak, Hazel J. Evans, Karen Lock, Woolf T. Walker and Jane S. LucasLaura Behan1PCD Diagnostic Centre, University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United Kingdom2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United KingdomSamantha Packham1PCD Diagnostic Centre, University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United KingdomAmanda Harris1PCD Diagnostic Centre, University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United KingdomSin Tung Mak2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United KingdomHazel J. Evans1PCD Diagnostic Centre, University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United KingdomKaren Lock1PCD Diagnostic Centre, University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United KingdomWoolf T. Walker1PCD Diagnostic Centre, University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United Kingdom2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United KingdomJane S. Lucas1PCD Diagnostic Centre, University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United Kingdom2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, Hampshire, United Kingdom
- Development of the QOL-PCD: A cross-cultural patient-reported outcome measure for adults with primary ciliary dyskinesiaBy Laura Behan, Audrey DunnGalvin, Alexandra L. Quittner, Adrianne Alpern, Neil Botting, Mary P. Carroll, Fiona Copeland, Michael R. Knowles, Margaret W. Leigh, Michele Manion, Tomaso Morelli and Jane S. LucasLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, United KingdomAudrey DunnGalvin3Dept Psychology, University College Cork, Cork, IrelandAlexandra L. Quittner4Dept Psychology, University of Miami, Coral Gables, FL,Adrianne Alpern4Dept Psychology, University of Miami, Coral Gables, FL,Neil Botting2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, United KingdomMary P. Carroll1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, United KingdomFiona Copeland5Patient Organisation, PCD Family Support Group, Milton Keynes, United KingdomMichael R. Knowles6School of Medicine, University of North Carolina, Chapel Hill,Margaret W. Leigh6School of Medicine, University of North Carolina, Chapel Hill,Michele Manion7Patient Organisation, PCD Foundation, Minneapolis,Tomaso Morelli2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, United KingdomJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom2NIHR Southampton Respiratory BioMedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom
- A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCDBy Jane S. Lucas, Laura Behan, Audrey Dunn Galvin, Adrianne Alpern, Anjana M. Morris, Mary P. Carroll, Michael R. Knowles, Margaret W. Leigh and Alexandra L. QuittnerArticle | Published in 2015 in European Respiratory JournalJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UK7Joint first authorsLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UK4Dept of Applied Psychology, University College Cork, Cork, Ireland7Joint first authorsAudrey Dunn Galvin4Dept of Applied Psychology, University College Cork, Cork, IrelandAdrianne Alpern5Dept of Psychology, University of Miami, Coral Gables, FL, USAAnjana M. Morris5Dept of Psychology, University of Miami, Coral Gables, FL, USAMary P. Carroll1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UKMichael R. Knowles6Dept of Medicine and Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, USAMargaret W. Leigh6Dept of Medicine and Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, USAAlexandra L. Quittner5Dept of Psychology, University of Miami, Coral Gables, FL, USA
- A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCDBy Jane S. Lucas, Laura Behan, Audrey Dunn Galvin, Adrianne Alpern, Anjana M. Morris, Mary P. Carroll, Michael R. Knowles, Margaret W. Leigh and Alexandra L. QuittnerArticle | Published in 2015 in European Respiratory JournalJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UK7Joint first authorsLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UK4Dept of Applied Psychology, University College Cork, Cork, Ireland7Joint first authorsAudrey Dunn Galvin4Dept of Applied Psychology, University College Cork, Cork, IrelandAdrianne Alpern5Dept of Psychology, University of Miami, Coral Gables, FL, USAAnjana M. Morris5Dept of Psychology, University of Miami, Coral Gables, FL, USAMary P. Carroll1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UKMichael R. Knowles6Dept of Medicine and Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, USAMargaret W. Leigh6Dept of Medicine and Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, USAAlexandra L. Quittner5Dept of Psychology, University of Miami, Coral Gables, FL, USA
- A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCDBy Jane S. Lucas, Laura Behan, Audrey Dunn Galvin, Adrianne Alpern, Anjana M. Morris, Mary P. Carroll, Michael R. Knowles, Margaret W. Leigh and Alexandra L. QuittnerJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UK7Both authors contributed equallyLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UK4Dept of Applied Psychology, University College Cork, Cork, Ireland7Both authors contributed equallyAudrey Dunn Galvin4Dept of Applied Psychology, University College Cork, Cork, IrelandAdrianne Alpern5Dept of Psychology, University of Miami, Coral Gables, FL, USAAnjana M. Morris5Dept of Psychology, University of Miami, Coral Gables, FL, USAMary P. Carroll1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK3Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UKMichael R. Knowles6Dept of Medicine and Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, USAMargaret W. Leigh6Dept of Medicine and Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, USAAlexandra L. Quittner5Dept of Psychology, University of Miami, Coral Gables, FL, USA
- Diagnosing primary ciliary dyskinesia; the patient perspectiveBy Laura Behan, Audrey Dunn Galvin, Sarah Masefield, Fiona Copeland, Michele Manion, Bernhard Rindlisbacher, Beatrice Redfern and Jane S. LucasLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southamptom, United Kingdom3School of Applied Psychology, University College Cork, Cork, IrelandAudrey Dunn Galvin3School of Applied Psychology, University College Cork, Cork, IrelandSarah Masefield4European Lung Foundation, Patient Relations, Sheffield, United KingdomFiona Copeland5Primary Ciliary Dyskinesia Family Support Group, PCD Family Support Group, Milton Keynes, United KingdomMichele Manion6Primary Ciliary Dyskinesia Foundation, PCD Foundation, Minneapolis, MN United StatesBernhard Rindlisbacher7Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation, Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation, Steffisburg, SwitzerlandBeatrice Redfern5Primary Ciliary Dyskinesia Family Support Group, PCD Family Support Group, Milton Keynes, United KingdomJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southamptom, United Kingdom
- LATE-BREAKING ABSTRACT: Lung function in patients with primary ciliary dyskinesia (PCD): A multinational studyBy Florian Halbeisen, Myrofora Goutaki, Elisabeth Maurer, Mieke Boon, Carmen Casaulta, Annick Clement, Suzanne Crowley, Eric G. Haarman, Bulent Karadag, Cordula Koerner-Rettberg, Henryk Mazurek, Lucy Morgan, Kim G. Nielsen, Francesca Santamaria, Nicolaus Schwerk, Panayiotis Yiallouros, Philipp Latzin, Jane S. Lucas and Claudia E. KuehniFlorian Halbeisen1Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandMyrofora Goutaki1Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandElisabeth Maurer1Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandMieke Boon2Department of Paediatrics, University Hospital Gasthuisberg, Leuven, BelgiumCarmen Casaulta3Department of Paediatrics, University Hospital of Bern, Bern, SwitzerlandAnnick Clement4Paediatric Pulmonary Department, Université Pierre et Marie Curie, Paris, FranceSuzanne Crowley5Department of Pediatric Medicine, Oslo University Hospital, Oslo, NorwayEric G. Haarman6Department of Pediatric Pulmonology, VU University Medical Center, Amsterdam, NetherlandsBulent Karadag7Department of Pediatric Pulmonology, Marmara University, School of Medicine, Istanbul, TurkeyCordula Koerner-Rettberg8Department of Paediatric Pneumology, University Children's Hospital of Ruhr University Bochum, Bochum, GermanyHenryk Mazurek9Klinika Pneumonologii i Mukowiscydozy, Instytut Gruzlicy i Chorób Pluc, Rabka-Zdrój, PolandLucy Morgan10Department of Respiratory Medicine, Concord Hospital Clinical School, University of Sydney, Sydney, AustraliaKim G. Nielsen11Danish PCD Centre Copenhagen, Paediatric Pulmonary Service, Copenhagen University Hospital, Copenhagen, DenmarkFrancesca Santamaria12Department of Translational Medical Sciences, Federico II University, Napoli, ItalyNicolaus Schwerk13Clinic for Paediatric Pulmonology, Allergology, Lung Transplantation, Hannover Medical School, Hannover, GermanyPanayiotis Yiallouros14Cyprus International Institute for Environmental & Public Health in Association with Harvard School of Public Health, Cyprus University of Technology, Limassol, CyprusPhilipp Latzin15Department of Pediatric Pulmonology, University Children's Hospital of Basel, Basel, SwitzerlandJane S. Lucas16PCD Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United KingdomClaudia E. Kuehni1Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland
- Accuracy of diagnostic testing in primary ciliary dyskinesiaBy Claire L. Jackson, Laura Behan, Samuel A. Collins, Patricia M. Goggin, Elizabeth C. Adam, Janice L. Coles, Hazel J. Evans, Amanda Harris, Peter Lackie, Samantha Packham, Anton Page, James Thompson, Woolf T. Walker, Claudia Kuehni and Jane S. LucasArticle | Published in 2015 in European Respiratory JournalClaire L. Jackson1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK7Both authors contributed equallyLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK4Department of Applied Psychology, University College Cork, Cork, Ireland7Both authors contributed equallySamuel A. Collins1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKPatricia M. Goggin1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK5Biomedical Imaging Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UKElizabeth C. Adam1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UKJanice L. Coles1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UKHazel J. Evans1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKAmanda Harris1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKPeter Lackie1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK5Biomedical Imaging Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UKSamantha Packham1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKAnton Page1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK5Biomedical Imaging Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UKJames Thompson1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UKWoolf T. Walker1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKClaudia Kuehni6Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK
- An international registry for primary ciliary dyskinesiaBy Claudius Werner, Martin Lablans, Maximilian Ataian, Johanna Raidt, Julia Wallmeier, Jörg Große-Onnebrink, Claudia E. Kuehni, Eric G. Haarman, Margaret W. Leigh, Alexandra L. Quittner, Jane S. Lucas, Claire Hogg, Michal Witt, Kostas N. Priftis, Panayiotis Yiallouros, Kim G. Nielsen, Francesca Santamaria, Frank Ückert and Heymut OmranArticle | Published in 2015 in European Respiratory JournalClaudius Werner1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, GermanyMartin Lablans2Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of Johannes Gutenberg University Mainz, Mainz, GermanyMaximilian Ataian2Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of Johannes Gutenberg University Mainz, Mainz, GermanyJohanna Raidt1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, GermanyJulia Wallmeier1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, GermanyJörg Große-Onnebrink1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, GermanyClaudia E. Kuehni3Institute of Social and Preventive Medicine (ISPM), Paediatric Respiratory Epidemiology, University of Bern, Bern, SwitzerlandEric G. Haarman4Dept of Paediatric Pulmonology, VU University Medical Center, Amsterdam, The NetherlandsMargaret W. Leigh5Dept of Pediatrics, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USAAlexandra L. Quittner6Dept of Psychology, University of Miami, Coral Gables, FL, USAJane S. Lucas7University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UKClaire Hogg8Dept of Respiratory Paediatrics, Royal Brompton Hospital, London, UKMichal Witt9Dept of Molecular and Clinical Genetics, Institute of Human Genetics, Polish Academy of Sciences, Poznan and International Institute of Molecular and Cell Biology, Warsaw, PolandKostas N. Priftis10Paediatric Pulmonology, 3rd Dept of Paediatrics, National and Kapodistrian University of Athens, School of Medicine, Attikon University Hospital, Athens, GreecePanayiotis Yiallouros11Cyprus International Institute for Environmental & Public Health in Association with Harvard School of Public Health, Cyprus University of Technology, Limassol, CyprusKim G. Nielsen12Danish PCD Centre, Paediatric Pulmonary Service, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Copenhagen, DenmarkFrancesca Santamaria13Dept of Medical Translational Sciences, Federico II University, Naples, ItalyFrank Ückert2Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of Johannes Gutenberg University Mainz, Mainz, GermanyHeymut Omran1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, Germany
- Accuracy of diagnostic testing in primary ciliary dyskinesiaBy Claire L. Jackson, Laura Behan, Samuel A. Collins, Patricia M. Goggin, Elizabeth C. Adam, Janice L. Coles, Hazel J. Evans, Amanda Harris, Peter Lackie, Samantha Packham, Anton Page, James Thompson, Woolf T. Walker, Claudia Kuehni and Jane S. LucasClaire L. Jackson1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK7Both authors contributed equallyLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK4Department of Applied Psychology, University College Cork, Cork, Ireland7Both authors contributed equallySamuel A. Collins1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKPatricia M. Goggin1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK5Biomedical Imaging Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UKElizabeth C. Adam1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UKJanice L. Coles1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UKHazel J. Evans1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKAmanda Harris1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKPeter Lackie1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK5Biomedical Imaging Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UKSamantha Packham1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKAnton Page1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK5Biomedical Imaging Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UKJames Thompson1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UKWoolf T. Walker1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKClaudia Kuehni6Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences Academic Unit, University of Southampton Faculty of Medicine, Southampton, UK3NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK
- An international registry for primary ciliary dyskinesiaBy Claudius Werner, Martin Lablans, Maximilian Ataian, Johanna Raidt, Julia Wallmeier, Jörg Große-Onnebrink, Claudia E. Kuehni, Eric G. Haarman, Margaret W. Leigh, Alexandra L. Quittner, Jane S. Lucas, Claire Hogg, Michal Witt, Kostas N. Priftis, Panayiotis Yiallouros, Kim G. Nielsen, Francesca Santamaria, Frank Ückert and Heymut OmranClaudius Werner1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, GermanyMartin Lablans2Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of Johannes Gutenberg University Mainz, Mainz, GermanyMaximilian Ataian2Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of Johannes Gutenberg University Mainz, Mainz, GermanyJohanna Raidt1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, GermanyJulia Wallmeier1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, GermanyJörg Große-Onnebrink1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, GermanyClaudia E. Kuehni3Institute of Social and Preventive Medicine (ISPM), Paediatric Respiratory Epidemiology, University of Bern, Bern, SwitzerlandEric G. Haarman4Dept of Paediatric Pulmonology, VU University Medical Center, Amsterdam, The NetherlandsMargaret W. Leigh5Dept of Pediatrics, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USAAlexandra L. Quittner6Dept of Psychology, University of Miami, Coral Gables, FL, USAJane S. Lucas7University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UKClaire Hogg8Dept of Respiratory Paediatrics, Royal Brompton Hospital, London, UKMichal Witt9Dept of Molecular and Clinical Genetics, Institute of Human Genetics, Polish Academy of Sciences, Poznan and International Institute of Molecular and Cell Biology, Warsaw, PolandKostas N. Priftis10Paediatric Pulmonology, 3rd Dept of Paediatrics, National and Kapodistrian University of Athens, School of Medicine, Attikon University Hospital, Athens, GreecePanayiotis Yiallouros11Cyprus International Institute for Environmental & Public Health in Association with Harvard School of Public Health, Cyprus University of Technology, Limassol, CyprusKim G. Nielsen12Danish PCD Centre, Paediatric Pulmonary Service, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Copenhagen, DenmarkFrancesca Santamaria13Dept of Medical Translational Sciences, Federico II University, Naples, ItalyFrank Ückert2Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of Johannes Gutenberg University Mainz, Mainz, GermanyHeymut Omran1Dept of General Paediatrics, Paediatric Pulmonology Unit, University Children's Hospital Muenster, Münster, Germany
- PICADAR: a diagnostic predictive tool for primary ciliary dyskinesiaBy Laura Behan, Borislav D. Dimitrov, Claudia E. Kuehni, Claire Hogg, Mary Carroll, Hazel J. Evans, Myrofora Goutaki, Amanda Harris, Samantha Packham, Woolf T. Walker and Jane S. LucasArticle | Published in 2016 in European Respiratory JournalLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UK3School of Applied Psychology, University College Cork, Cork, IrelandBorislav D. Dimitrov4NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK5Primary Care and Population Sciences, Faculty of Medicine, University of Southampton, Southampton, UKClaudia E. Kuehni6Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandClaire Hogg7Primary Ciliary Dyskinesia Centre, Dept of Paediatrics, Royal Brompton and Harefield Foundation Trust, London, UKMary Carroll1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UKHazel J. Evans1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKMyrofora Goutaki6Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandAmanda Harris1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKSamantha Packham1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKWoolf T. Walker1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UK4NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UK4NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK
- PICADAR: a diagnostic predictive tool for primary ciliary dyskinesiaBy Laura Behan, Borislav D. Dimitrov, Claudia E. Kuehni, Claire Hogg, Mary Carroll, Hazel J. Evans, Myrofora Goutaki, Amanda Harris, Samantha Packham, Woolf T. Walker and Jane S. LucasLaura Behan1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UK3School of Applied Psychology, University College Cork, Cork, IrelandBorislav D. Dimitrov4NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK5Primary Care and Population Sciences, Faculty of Medicine, University of Southampton, Southampton, UKClaudia E. Kuehni6Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandClaire Hogg7Primary Ciliary Dyskinesia Centre, Dept of Paediatrics, Royal Brompton and Harefield Foundation Trust, London, UKMary Carroll1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UKHazel J. Evans1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKMyrofora Goutaki6Institute of Social and Preventive Medicine, University of Bern, Bern, SwitzerlandAmanda Harris1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKSamantha Packham1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UKWoolf T. Walker1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UK4NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UKJane S. Lucas1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK2Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton, UK4NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK
- BronchiectasisEdited by James D. Chalmers, Eva Polverino and Stefano AlibertiBook | Published in 2018DOI: 10.1183/2312508X.erm8118ISBN (electronic): 978-1-84984-098-9James D. ChalmersEva Polverino
- ERS Handbook of Respiratory MedicineEdited by Paolo Palange and Gernot RohdeBook | Published in 2019DOI: 10.1183/9781849840798.erh01ISBN (electronic): 978-1-84984-079-8
- ERS Handbook of Paediatric Respiratory MedicineEdited by Ernst Eber and Fabio MidullaBook | Published in 2021DOI: 10.1183/9781849841313.eph01ISBN (electronic): 978-1-84984-131-3
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